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Ophthalmology and Visual Sciences

皇家华人 Ophthalmology and Visual Sciences Research Study - MacTel Natural History Observation and Registry

Purpose of study:
The MacTel Natural History Observation and Registry (NHOR) is a world-wide registry of people with macular telangiectasia (MacTel) Type 2, their family members, healthy volunteers and people with possibly related conditions (such as but not limited to diabetes mellitus, or neurologic disorders such as HSAN1). This registry was created so that scientists can better understand characteristics of MacTel Type 2, in order to develop future treatments.

What is MacTel Type2?
MacTel Type 2 is an uncommon eye disorder that results in slow vision loss beginning in middle age. The macula is the central part of the retina which is responsible for central or reading vision. Telangiectasis refers to dilated, leaky blood vessels. Unfortunately, little medical information is known about MacTel Type 2 at this time and in many cases of MacTel Type 2 there are no known treatments to prevent vision loss.
 


What is involved in this study?
To be included in this registry, participants will come to the Eye Institute for one study visit with an option to return to the clinic for additional visit(s). At this visit participants will have images taken of the back of the eye (the retina), a blood sample will be drawn, and an eye exam will be performed. Participants will also have the opportunity to register in the Contact Database for future contact and to stay up to date on the research being done pertaining to MacTel.

Compensation:
Research volunteers will not be paid for participating in this project.

 

You may be eligible to participate in this study if you meet these criteria.

  1. You are 18 years of age or older.
  2. An eye doctor has told you that you have or may have MacTel Type 2 or are an immediate family member (related by blood) of a participant diagnosed with MacTel.
  3. A Volunteer (healthy or affected with a possibly related disorder such as diabetes mellitus, or neurologic disorders such as HSAN1

Please select an option below.

Your Information

Please answer Yes or No to the following questions. (You refers to you or your family member as appropriate.)

Additional Information

By submitting this form, I acknowledge that I would like to be contacted about the MacTel Natural History Observation and Registry study and understand that submission of this form in no way obligates me to participate in this study. We will contact you as soon as we can. Thank you for your patience. If you have questions, please contact Amber Irons at (414) 955-2031.

Contact Ophthalmology

For patient care inquires, call us at (414) 955-2020 or use MyChart. Email is for research and education inquiries only.

Eye Institute Location

925 N. 87th St.

Milwaukee, WI 53226

 

Appointments

(414) 955-2020

(414) 955-6166 (fax)

 

Continuing Medical Education

Amanda Tan

atan@mcw.edu

(414) 955-2049

 

Medical Education Coordinator

Ophth-Residency@mcw.edu

 

Associate Director of Development - Ophthalmology

Sarah Walker

sarawalker@mcw.edu

Refer to Us - Consultation requests

Patient Referral Form (PDF)

Fax to (414) 955-0136

 

Emergent Requests

Within 48 hours call

(414) 955-2020

 

Research

Vesper Williams

vewilliams@mcw.edu

(414) 955-7862

 

Advanced Ocular Imaging Program

aoip@mcw.edu

(414) 955-2647

 

Eye Institute Executive Director (Administrator)

Shannon Dreier

sdreier@mcw.edu

Eye Institute Google map location

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